Aphasia Assessments & Outcomes
Assessments may seek to capture activities, participation and impairment following aphasia across different tools. Language impairment alone may be measured by spoken language production, comprehension of spoken language, reading and writing abilities. Measures may vary between scientific disciplines and languages across countries. This Working Group facilitates the use of accurate, validated and reliable assessment and outcome measures across international aphasia research. Current activities include the translation of aphasia assessment tools onto different languages which will enable use across multicentre, international aphasia trials. A core outcome set supports greater coordination of data collection across aphasia research so we capture measures that are important to people with aphasia, their families and healthcare professionals and that our research data complements and builds upon other dataset to enhance our overall understanding of aphasia.
Prognosis and Predictors
“We need better insight into the pattern of language recovery amongst people that experience aphasia. Age, sex, educational background or cognition may play a role. There is uncertainty about which individuals are likely to respond well to specific rehabilitation approaches. This Working Group examines how prognostic variables impact on the recovery and successful rehabilitation of people with aphasia.
Effectiveness of interventions
Speech and language therapy benefits people with aphasia after stroke. Aphasia treatment and rehabilitation could be optimised if we had a greater understanding of the components of effective aphasia rehabilitation. For example timing, intensity, duration or therapy approach may be important factors. Through the analyses of combined datasets this Working Group is working to enhance the reporting of therapy intervention and explore the effectiveness aphasia rehabilitation programmes.
Societal Impact and Reintegration
Aphasia rehabilitation aims to maximise a person’s functional communication, thereby facilitating re-integration into family and community circles. However few outcome measures that attempt to capture this aspect of impact, specific rehabilitation approaches may be required. This Working Group are co-ordinating consensus activities to establish the optimum approach to capturing these important outcomes of aphasia rehabilitation and develop and evaluate interventions to facilitate reintegration.