Support for People with Aphasia:
- The Tavistock Trust for Aphasia has developed the Aphasia Software Finder. The Aphasia Software Finder is a free, online website that enables people with aphasia, their friends and families, as well as speech and language therapists to identify appropriate aphasia therapy software programs and apps in the English language. The website also includes links to other useful software, apps and websites.
Support for Aphasia Researchers:
The NIHR Clinical Research Network: Stroke (CRN: Stroke) has launched a new set of aphasia friendly online resources for researchers to help them to recruit and involve patients with aphasia in clinical trials.
People who have aphasia are often excluded from participating in research studies because of their communication difficulties. Patients, carers and researchers have expressed a wish for studies to try to include more people with aphasia where possible.
Gill Pearl, Project Manager, (seconded from Speakeasy) worked with people with aphasia and researchers to collate existing resources and to develop new materials to help researchers to enable more people with aphasia to participate in studies.
These resources are freely available and include:
• Study information sheets and forms designed specifically for people with aphasia
• Tips on how to enable people with aphasia to participate in studies
• A wide range of images which can be used in studies to facilitate communication with people with aphasia.
This set of resources will help researchers to write aphasia friendly information leaflets, consent forms, study guides and more.
Zena Jones, Senior Manager at CRN: Stroke said “It was really important to get first-hand information from both researchers and people with aphasia to ensure we could overcome the problems faced. We also created a “user group” which included stroke carers to test out the new materials. The feedback and support of all involved has been crucial to this project and I’m sure these resources will make a real difference to supporting researchers to encourage more people with aphasia to participate in studies.”
The resource pack can be downloaded here: bit.ly/1yu6giK